So last week I had my follow up appointment with the boob surgeon. I already had an inkling of what was coming because he had called me after he got the pathology results. When he called, he said that he was "flabbergasted" by the results because instead of showing microcalcifications or even that everything was gone from the needle biopsy, the entire section of tissue that he had removed was full of DCIS (ductal carcinoma in situ). He said we'd discuss options at my follow up and mentioned getting an MRI, genetic testing, maybe going in and taking more tissue followed by radiation, and "a mastectomy is a possibility."
Cut to two weeks later as Aaron and I are sitting in an exam room. This is when we found out that the size of the DCIS was six centimeters, as opposed to the four or five millimeters he was expecting. He started talking about a mastectomy rather than another lumpectomy/radiation and said that that was the way to go due to my family history and my young age. (If there's one thing that makes me feel good during all this shit, it's how often I get called "young.")
|Once again, the odds are not in my favor.|
But how much do I love Effie's butterfly dress?
Boob surgeon still says it's Stage Zero and noninvasive, but he's concerned because of the above reasons and because we were all surprised by the pathology results. So... last week I met with a genetic counselor and had my blood drawn for testing to find out if I'm genetically at risk for breast cancer (and for other cancers as well). Yesterday I met with plastic surgeons to talk about reconstruction options. In about a month I'll have an MRI to see if there's anything lurking that hasn't previously shown up.
As it stands now the plan is a bilateral mastectomy (meaning removal of both breasts) with reconstruction at the same time. If I were absolutely determined to save the breast, we could do more tissue removal, but I'm not. I want these traitorous body parts gone. I know that some people would not go that route, but fortunately I still have some control over what happens to my body. It's my decision and thankfully Aaron supports that.
It's an overwhelming amount of information. I'm always aware that this could be much worse. I'm thankful that I'm able to be proactive instead of reactive. I'm amazed and touched by my support system. I have an incredible group of family and friends and framily (damn you, Sprint, for making that word uncool). While I'm still in kick-ass mode, I also have my ugly-crying-in-the-shower moments, too.
I've been MIA in blog world, both writing and reading. Part of the reason I need to write about all of this is because I can't secretly pretend everything is sunshine and kittens when it's not. But I'm hopeful that I can get back to writing some
Thanks for reading!